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Boston Globe, June 12, 2005
Weathering the
embryo debate
By Ellen Goodman
I DON'T think I've ever heard quite so much about
snowflakes in June. Talk about an odd weather
pattern. Could it be the prevailing political
winds?
The weather report began during a photo op of
the president kissing babies. This was not
unusual for a politician, but these babies
were wearing T-shirts that read ''former embryo"
and ''this embryo was not discarded."
They were children dubbed ''Snowflakes"
by a group that promotes what they call ''embryo
adoption." The photo op followed the House
passage of a bill that would let the government
pay for research on stem cell lines derived
from leftover embryos stored in fertility clinics.
The Senate is expected to pass a similar bill
soon, but the president has promised to give
it his first-ever veto.
The Snowflakes were on hand to show that, in
Bush's words, ''there is no such thing as a
spare embryo." The alternative is ''adoption."
Bush, mind you, has done a bit of adopting himself.
He's adopted the language of prolife absolutists.
He now calls embryos ''real human lives"
just like ''the lives of those with diseases
that might find cures." Tom DeLay goes
a step further when he describes research using
embryos as ''the dismemberment of living, distinct,
human beings." Not to be outdone, Representative
Virginia Foxx of North Carolina talks of the
''slaughter of human life."
When people claim to believe that a frozen embryo
is the moral equal of a child, ethicists like
to pose this question: If a clinic is on fire
and you could save either a 2-year-old or a
vial full of embryos, which would you pick?
In this case, if an embryo is truly another human
being, what are we to make of the Snowflake
families? Donielle Brinkman and her husband
received 11 frozen embryos from a clinic. After
four transfers of multiple eggs and three miscarriages
over several years, she gave birth to Tanner.
According to their reasoning -- not mine --
if all the embryos were persons, did she produce
one child and destroy 10?
Couldn't you argue that some Snowflakes are better
off in the freezer than sent on the dicey journey
to the womb? And what do you say about the
40 percent to 80 percent of embryos that never
make it to the womb in the natural scheme of
things?
But back to the weather report. Today, there
are 400,000 embryos stored in clinics but only
81 ''Snowflakes." Photo ops notwithstanding,
most couples do not turn to in vitro fertilization
because they want their genetic offspring to
be raised by others. And few couples are waiting
to be impregnated with others' embryos.
Only 4 percent of the frozen embryos are available
for donation -- half designated for research
and half for infertile couples. No way will
they all be ''adopted." And this brings
us to the question that's been far too easy
to evade. What are the responsibilities of
the couples who create the frozen embryos and
the clinics that store them?
When couples embark on the journey of in vitro
fertilization, they are thinking about babies,
not leftovers. The ethics committee of the
American Society for Reproductive Medicine
has long said that clinics should have couples
sign advance directives about the fate of embryos
in case of death, divorce, separation, the
failure to pay for storage fees, or ''abandonment."
No one knows how many clinics actually do it.
Couples who have gone through IVF may find it
hard to decide when their childbearing option
is over. Many decide not to decide the fate
of their embryos.
One Massachusetts clinic owner has 1,100 clients
who have stopped paying the $300 annual fee
for storage. But none has given him the right
of disposal.
What happens when 400,000 embryos become 800,000?
Will embryos stored in the 1990s still be stored
in 2050?
Embryos are not human beings. Nor are they hangnails.
They carry the potential for human life that
deserves moral attention and respect. It's
not disrespectful to donate embryos to the
search for a cure for diseases. Nor is it respectful
to keep embryos in a freezer until they're
eligible for Social Security.
People who are responsible for creating an embryo
have the responsibility for what happens to
that embryo. No clinic should be required to
run a frozen limbo. It's up to the man and
woman to decide whether the embryos are to
be kept in storage or removed, donated to other
couples or to science.
So far the storm over stem cells has been stirred
up by politics. But the same couples who pursued
parenthood in a petri dish can help quiet a
very turbulent weather pattern.
Ellen Goodman's e-mail address is ellengoodman@globe.com.
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